Monkey's Fight

It's been a few weeks since our last blog & wanted to report on how the lil man is doing. So we're 4+ weeks since nick's last seizure. The new medication seems to have a good handle on his infantile spasms. We are so thrilled that he is doing so well. It's been a busy few weeks for the Torpey household. Rhonda Walker, from Channel 4 News, stopped by October 23rd for an interview on our son. We are waiting to hear back as to when it will air but it should be sometime this week. As apprehensive as we were initially to have this interview, we are truly hopeful that our son's story will continue to bring awareness to this very rare & often times, unheard of, disease. We are hopeful that our story can reach those who are looking for support as well.

Nick also celebrated his first Halloween. We had a houseful of family over to enjoy in this wonderful day for our son. I must admit, he made a good looking monkey, that's for sure. We went around to the neighbors to show off our lil man & was able to get a few pics with his pal, Noah.

We are seeing some great improvements with our son. He is looking at us when we talk, has better head control & seems to be getting stronger with each passing day. I cannot express the gratitude our family has for the continued support & prayers. We are truly blessed to be given such an amazing support system in our family, friends & community. We look forward to our next fundraiser this Thursday which reminds me that I should be working on the raffle baskets.

With all of our love, we thank you!! The Torpey's Jennifer, Nick & Monkey