Love Transcends

Our son is 8 month's old today & has gone 3 amazing weeks without 1 single seizure. I cannot be more proud of this lil man & the fight he has within. Each day that he continues to fight, that he continues to get strong, is a day to celebrate in my book. A day for me to embrace, hold on to & cherish forever. Through this journey, I have come to TRULY realize the significance in life, what truly matters to me. I had so many dreams & plans for my son, like I had already scripted his future for him already (in many ways, I think most parents are guilty of doing such). But throughout our diagnosis, a wise man said to me "Sometimes the dreams we have for our children may not be as we had planned but have always been God's plan" This brings so much comfort to me (:

Like I mentioned, my outlook on life has changed in so many ways. I was raised by a strong, loving, supportive & nurturing family & have never taken for granted how blessed I am. But to be honest, I think I got lost along the way in my early adult years. What once mattered to me no longer does or at least doesn't measure as high as it once did. I only hope that everyone can recognize what is truly important to them, be true to it & appreciate what they do have w/o having to go through something life altering in order to get to that place.

This week has been a crazy busy one for us.. Family pics on Monday, which monkey slept through the entire session, despite 3 wardrobe changes. The photographer did an amazing job & dedicates a lot of her time to working with family's with terminally ill children. She posted just a few pics on her blog & we are anxious to see how the proofs turn out. If you would like to check the few out, please go to her website @ www.reflectionsbyheatherbrown.blogspot.com

Nick & I initially struggled with opening up our lives to everyone outside of our immediate family once we heard the diagnosis. But through the support of our wonderful family & friends, we have not had 1 regret in sharing this with everyone. Guess when you go viral, you need to be okay with letting anyone & everyone know. We have been very fortunate to be lined up with Channel 4 news. Rhonda Walker will be coming by tomorrow to meet with us & I must admit I'm very nervous. But what a great opportunity to shed light on Mitochondrial Diseases & our son's condition. I can only hope that this forum provides us with an opportunity to bring awareness to this rare & very underfunded, under-researched disease.

I need to get some rest & hope that every one of you reading this today will be comforted by the good in your life! I hope that you will kiss your loved ones & remind them how much they are loved!!