Our Fight

On February 21st, 2009 the most beautiful gift was given to us, our son, Nicholas James.  He was born a healthy, happy, 7lb 8oz bundle of joy.  With each day that passed, our hearts continued to grow with this immense love that we never knew existed prior to having our son.

On Saturday, August 1st our son was rushed to the hospital because of Respiratory Distress. Shortly after being admitted to the ER, he was intubated where he remained as such for 6 very long & emotional days.  By day 3 of his hospital stay & several tests, our doctors had advised we be transferred over to U of M Children's Hospital to have further tests run.  Our entire family made the 1 hour trek to U of M for the next 10 days to support the 3 of us as we continued down this journey.  Their love, support & prayers gave us the strength we needed to fight for our son.

Shortly before our discharge, my son was diagnosed with an extremely rare Mitochondrial Disorder, called Leigh's Disease.  Unfortunately, this horrific disease has no cure & is considered to be terminal.  While this news devastated our entire family, we continue to pray for a miracle & the strength to persevere.  It's our hope that we uncover every rock there is to find a way to bring our beautiful & happy baby boy back to us!!!