Daddy & Uncle Jimmy are gone this weekend to meet a doctor who is doing some clinical trials with gene therapy, hopefully this could be an option for our son. Monkey & Mommy miss daddy & can't wait to see him tomorrow. xoxoxoxo jenn & monky
Saturday, September 26, 2009
The results have come back & there is evidence of seizure activity on the EEG. Not sure we necessarily needed another EEG to determine that because the medications are a trial & error no matter what type/s he is having. The new medication is not working as we had hoped so they have prescribed a 3rd anti-seizure medicine that we are going to try in another few days. In the meantime, the doctor has increased his 2 other medications now that monkey is a whopping 14lbs & his built up a tolerance for his medicines. For a child who was on the low end of the curve has definitely beefed up since leaving U of M., that makes mommy & daddy so happy... The therapists have suggested a specific type of seat that may help monkey with his head control but we haven't seen that just yet.
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