Nurse Kim stopped by today. We do not get to see her much because she works nights, but she is very special to us. Several months ago, she saved us an ambulance ride and emergency room visit on a terrifying Friday night. Nicky was suffering from clusters of seizures that would stop him from breathing for 10 seconds at a time. We thought we were going to have to perform CPR a couple times, and called both Walk With Me and 911 for help.
The ambulance and Nurse Kim arrived at the same time, but Kim was able to treat the seizures. This is important because the emergency room is very stressful for Nick, and it is just an awful place for him to spend the night. We have to do everything we can to conserve his energy. Kim followed up every day for the rest of the weekend, just to see how Nicky was feeling. She is a sweetie.
Kim was amazed by how much Nick has grown since she last saw him. I believe he was around 12 lbs at the time, and now he's almost 18 lbs! We also learned that his height is in the 25% percentile, which is pretty good considering he was not even on the charts a few months ago!
The past week has been a lot of fun.
We took Nicky to Church last Saturday. This is the first time he saw Monsiniour Mike since the baptism. Every time Monsiniour Mike would speak, or chant, Nicky would talk back! I think he enjoyed the acoustics in the church. Someone commented on Jenn's facebook page that Nicky was "talking to God". I like the thought of that a lot.
On Sunday, Uncle Jimmy treated the family to Christmas dinner at the Detroit Golf Club. It was excellent. Nicky is a big shot already, hangin' out with his God Father at "the club".
Everyone is noticing a lot of good things about Nicky. Jen and I are noticing good things too. He seems to have more energy, and is making more of an effort to hold his head up. He also seems to be looking at things a lot more, especially the Christmas tree. We may just turn in to those people that keep the lights up all year!
We are grateful for right now, and happy, that we are able to enjoy our baby with out the paranoia of dangerous seizures or emergency room trips or breathing problems. I am knocking on wood as I type, and will say a prayer tonight as I do every night, that things will keep moving forward.
I am so proud of my baby boy. So resilient. He is a Torpey, and he is strong!
God bless.
Love, Daddy
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