14 Months Old

We're happy to say that Nick is as lovable, stubborn, charismatic & adorable as ever!! He is doing good & responding well to his physical therapy sessions with Suzanne & Lisa, not to mention with grandma & grandpa too :) He is getting long & chubby (or pleasantly plumb as mamma calls it) , so Kris says we need to cut back on his calories. He seems to be responding well to that as he's lost a few oz & is now at 21.3....Nick continues to show no signs of seizures & we're considering asking the doctor to lower his medications to see how he responds. Unfortunately, our lil man does not really want to eat. He will take a few spoonfuls a day but isn't interested in any more than that. We know when he's had enough when he shuts his lips tightly down!!!! We're actually taking in him for surgery tomorrow to place the G-tube through his tummy. The feeding tubes we've been using since Nick got sick were only a temporary solution. I'm scared to death but know that God is with our son & will protect him & the doctors & nurses who are responsible for his care. When we laid him down to bed tonight, I couldn't help but squeeze him tighter & longer than I normally do each night. This lil guy has such an amazingly beautiful, strong, courageous, loving soul. I cannot tell you how honored I am to be his mom. My son has taught me so much in his 14 months of life, more than I ever knew possible. I pray that tomorrow he fights with the same tenacity his shows us every day & recovers quickly from his surgery. We'll keep you posted with how everything goes once things get settled back at home. We are truly blessed to have such an amazing circle of support & love from all of our friends, family, community & church. We thank all of you for your prayers & love. Jenn